Hello all
it's been a while but have been too sick to even think about this. last week went to see my gastro, he sent me to yet another one that was suppose to put me in hospital but unfortunately the 2nd doc was on his way to vacation and couldn't be bothered at the time.
however, he did prescribe 2 new meds that may have helped. Flagyl and Levaquin. Am feeling better but am having the tendon pains that go along with one of these and it seems like one is working as a water pill. but i will take it since i have had no pain and i have eaten thinigs that I know will cause pain just to test.
am still at 60 mg of pred but i think i am going to look into alternative meds soon. at this moment i am on 13 different medications and i take 12 pills of just one of those meds. (asacol)
well, that's my news. looking for a local gastro so i don't have to fly to atlanta to see mine but i want the local to work with my doc in atlanta, i trust him.
hope anyone who reads this is doing well and please stay hydrated. it's horrid down here in florida
thanks for reading
Saturday, June 27, 2009
Friday, May 22, 2009
emergency room visit
Yesterday I went to the ER in my town. I just got tired of the overwhelming pain, and when the blood. I spoke with my doc who lives in Atlanta and was concerned so off we went to the hospital.
They ran a cat scan to make sure it was "just" the UC because after this many years things can become worse. Other issues can rear their ugly heads. But it was the UC.
So after a few hits of demerol and then a script for pain meds and nausea they sent me home.
Everyone was so nice there. They didn't even get my insurance info until they had me in the back and hooked up to the meds. New policy seems to be patient care first. I liked that.
Still in some pain today of course. But not like yesterday. It showed me that I really do need to appreciate the better days.
We all should. So have a safe and wonderful holiday. I hope to do so as well.
thanks for reading.
They ran a cat scan to make sure it was "just" the UC because after this many years things can become worse. Other issues can rear their ugly heads. But it was the UC.
So after a few hits of demerol and then a script for pain meds and nausea they sent me home.
Everyone was so nice there. They didn't even get my insurance info until they had me in the back and hooked up to the meds. New policy seems to be patient care first. I liked that.
Still in some pain today of course. But not like yesterday. It showed me that I really do need to appreciate the better days.
We all should. So have a safe and wonderful holiday. I hope to do so as well.
thanks for reading.
Wednesday, May 20, 2009
stressful week
It's been a very stressful week and my body is in agreement with me. Have been in a lot of pain for the past several days, lots of blood. Am very tired. Anemic.
Having a pain pill and if that does not work then I will be going to the emergency room. After taking 4 lomotils (the no-go pills), they didn't really work, I have visited most of the bathrooms between my house and my moms (100 miles away). The pills as I stated didn't work, and I have been in a lot of pain for days. Am not really registering life right now.
that's my day. hope yours was better.
Having a pain pill and if that does not work then I will be going to the emergency room. After taking 4 lomotils (the no-go pills), they didn't really work, I have visited most of the bathrooms between my house and my moms (100 miles away). The pills as I stated didn't work, and I have been in a lot of pain for days. Am not really registering life right now.
that's my day. hope yours was better.
Sunday, May 17, 2009
ear aches, tummy aches
Good afternoon.
It's a wet one here in the panhandle of Florida. Didn't water the lawn this morning so I guess it's a good thing.
Have been experiencing ear aches. which is not making me happy. And my hearing is still diminished due to the ear tubes, again not happy.
AND, even with 40 mg of prednisone, am having a horrid time with the tummy. Up and down all night, the bleeding, the pain, the urgency. I am back on all meds and I know it will take a bit of time to get back on schedule but I am tired of screaming into a washcloth in the middle of the night. No rest, no sleep, scared of food.
well, that's been my few days, hope yours are better.
It's a wet one here in the panhandle of Florida. Didn't water the lawn this morning so I guess it's a good thing.
Have been experiencing ear aches. which is not making me happy. And my hearing is still diminished due to the ear tubes, again not happy.
AND, even with 40 mg of prednisone, am having a horrid time with the tummy. Up and down all night, the bleeding, the pain, the urgency. I am back on all meds and I know it will take a bit of time to get back on schedule but I am tired of screaming into a washcloth in the middle of the night. No rest, no sleep, scared of food.
well, that's been my few days, hope yours are better.
Tuesday, May 12, 2009
back on the roids
Hey all.
Haven't been in the frame of mind to write. I ran out of most of my meds and since I get them via mail and get 3 months at a time, it's a bit expensive so I had to wait until I could afford them. I was out of pretty much everything but prednisone, including the blood pressure meds.
And now, my flare is worse. Up to 40 mg of prednisone again. It feels as if a fork is being used to tenderize my colon. Not being able to sleep, having to take no-go's (lomotil) in order to leave the house at all.
The stress of my little ear thing, the pain from that, the everyday stress, has all come crashing down on me.
However, I am able to "breath" for a moment. Dale is gone to Birmingham to see a couple of doctors. We feel he was exposed to some sort of mold last year and has not been able to do either his art nor really start looking for a job. Hopefully these docs will be able to help him. We are going to start a website in regards to what he went through for that. When that is up and running I will post it here. Unfortunately, a lot of docs don't believe that, but I have seen it first hand with him. We went to at least 7 doctors and no one would believe him! Very frustrating. It reminded me of when I first started having the problems with my colon. It took me a couple of years to find anyone to even do a test on me. They said bleeding was common. Well, maybe some blood is but not what I was having then. And not what I am having now.
I am so tired from the blood loss, but can't sleep due to steriods.
Am rambling so will end now.
Thanks for reading.
Haven't been in the frame of mind to write. I ran out of most of my meds and since I get them via mail and get 3 months at a time, it's a bit expensive so I had to wait until I could afford them. I was out of pretty much everything but prednisone, including the blood pressure meds.
And now, my flare is worse. Up to 40 mg of prednisone again. It feels as if a fork is being used to tenderize my colon. Not being able to sleep, having to take no-go's (lomotil) in order to leave the house at all.
The stress of my little ear thing, the pain from that, the everyday stress, has all come crashing down on me.
However, I am able to "breath" for a moment. Dale is gone to Birmingham to see a couple of doctors. We feel he was exposed to some sort of mold last year and has not been able to do either his art nor really start looking for a job. Hopefully these docs will be able to help him. We are going to start a website in regards to what he went through for that. When that is up and running I will post it here. Unfortunately, a lot of docs don't believe that, but I have seen it first hand with him. We went to at least 7 doctors and no one would believe him! Very frustrating. It reminded me of when I first started having the problems with my colon. It took me a couple of years to find anyone to even do a test on me. They said bleeding was common. Well, maybe some blood is but not what I was having then. And not what I am having now.
I am so tired from the blood loss, but can't sleep due to steriods.
Am rambling so will end now.
Thanks for reading.
Wednesday, May 6, 2009
Tubes in ears today!!!!
Hey all.
Am a bit dingy, well more than usual thank you very much. Today I had out patient procedure to have tubes put into my ears as I have so many double ear aches. Not fun. But today, hopefully, I started on the path to end this.
The procedure didn't take too long. it was almost cancelled. My doc changed offices and that somehow changed her tax id which changed her status with Medicare and United Health Care. Her office called yesterday, the day before the procedure, to let me know that this and that it might be considered out of network which I can't afford. They called back later to state that anything the insurance and medicare doesn't cover, they will write off. So, they are so concerned about their patients.
And since I couldn't have anything to eat or drink after midnight, I was not able to take meds. they had to give me a steroid to make sure I didn't have any problems with the drugs or procedure. I had never thought of that.
After looking at a diagram I definitely understand my ear problems. The canal should go straight in and mine goes basically in a bit and then straight up.
Hopefully this will help my chronic ear aches, vertigo, and problems with flying.
Well, this is all. I have wonderful company for the rest of the week. My nephew and his gal. I love them both dearly so i won't be back much for the rest of the week.
On a different note, I discovered that the young man who had shot and killed the local deputies was the son of a neighbor of mine. They are heartbroken and have no idea how this happened. I am so sorry for them. Keep them in your prayers as they are so confused.
Thanks for reading and have a good night.
Am a bit dingy, well more than usual thank you very much. Today I had out patient procedure to have tubes put into my ears as I have so many double ear aches. Not fun. But today, hopefully, I started on the path to end this.
The procedure didn't take too long. it was almost cancelled. My doc changed offices and that somehow changed her tax id which changed her status with Medicare and United Health Care. Her office called yesterday, the day before the procedure, to let me know that this and that it might be considered out of network which I can't afford. They called back later to state that anything the insurance and medicare doesn't cover, they will write off. So, they are so concerned about their patients.
And since I couldn't have anything to eat or drink after midnight, I was not able to take meds. they had to give me a steroid to make sure I didn't have any problems with the drugs or procedure. I had never thought of that.
After looking at a diagram I definitely understand my ear problems. The canal should go straight in and mine goes basically in a bit and then straight up.
Hopefully this will help my chronic ear aches, vertigo, and problems with flying.
Well, this is all. I have wonderful company for the rest of the week. My nephew and his gal. I love them both dearly so i won't be back much for the rest of the week.
On a different note, I discovered that the young man who had shot and killed the local deputies was the son of a neighbor of mine. They are heartbroken and have no idea how this happened. I am so sorry for them. Keep them in your prayers as they are so confused.
Thanks for reading and have a good night.
Friday, May 1, 2009
Life is so fragile
Good afternoon.
Today I saw something that touched my heart. There was a funeral procession for a deputy that had been killed in the line of duty last Saturday. Quick background - domestic dispute, 2 deputies sent to arrest the husband. Found him at a shooting range. They tried to arrest, they tasered and he shot them both in the head. Killed both of them.
One funeral was yesterday. The other today. The only reason I know is that I had left my home to run a few errands and met the procession on the way. Now I don't know if other areas of the country do this but here in the South, when we meet a funeral procession we stop. Pull over to the side of road and be respectful.
I got out of my car and watched as the over 2000 cars drove by. We are in the Florida Panhandle and there were law enforcement vehicles from all over the south, not just our state. Also Coast Guard, Life Guard, etc.
These men left families. I am sure they understood that their jobs were dangerous. But we live in a small town where this sort of thing doesn't happen often.
The shooter was pursued to another county and when he got out of his truck he got out shooting so they of course shot back and killed him. The reports in the papers were the domestic dispute started over a tube of acne cream. His wife already had him arrested for domestic violence but where was she? Back with him. So now his "domestic abuse" has ruined 2 other families.
How sad she couldn't get out before something like this happened. I was in an abusive marriage many years ago. I was very young and very stupid. Luckily we had no children so when I decided to end it and knew that it could very well end my life to do so, I had only myself to worry about.
There are so many options out there for those in a violent relationship. Please get out of it. Seek those options. Don't let others (like the deputies) literally have to die before you do. Staying in an abusive relationship is not their choice for you.
Pray for the families of the deputies and for the family of the shooter.
Today I saw something that touched my heart. There was a funeral procession for a deputy that had been killed in the line of duty last Saturday. Quick background - domestic dispute, 2 deputies sent to arrest the husband. Found him at a shooting range. They tried to arrest, they tasered and he shot them both in the head. Killed both of them.
One funeral was yesterday. The other today. The only reason I know is that I had left my home to run a few errands and met the procession on the way. Now I don't know if other areas of the country do this but here in the South, when we meet a funeral procession we stop. Pull over to the side of road and be respectful.
I got out of my car and watched as the over 2000 cars drove by. We are in the Florida Panhandle and there were law enforcement vehicles from all over the south, not just our state. Also Coast Guard, Life Guard, etc.
These men left families. I am sure they understood that their jobs were dangerous. But we live in a small town where this sort of thing doesn't happen often.
The shooter was pursued to another county and when he got out of his truck he got out shooting so they of course shot back and killed him. The reports in the papers were the domestic dispute started over a tube of acne cream. His wife already had him arrested for domestic violence but where was she? Back with him. So now his "domestic abuse" has ruined 2 other families.
How sad she couldn't get out before something like this happened. I was in an abusive marriage many years ago. I was very young and very stupid. Luckily we had no children so when I decided to end it and knew that it could very well end my life to do so, I had only myself to worry about.
There are so many options out there for those in a violent relationship. Please get out of it. Seek those options. Don't let others (like the deputies) literally have to die before you do. Staying in an abusive relationship is not their choice for you.
Pray for the families of the deputies and for the family of the shooter.
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